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Lucas

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Olivia

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Frankie

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Kolbe

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*John & Samantha*

Wednesday, May 12, 2010

An Update

I went to a urologist on monday to try to find out why I am having kidney pain, and what I can do about the 4 stones I have. As usual, the doctor doesn't trust that I am actually having kidney pain. Just like my original Primary doctor didn't even want to do a CT scan, and wasn't even the one to call me when the results did in fact reveal 4 stones. This urologist says 'the likelihood of your stones causing kidney pain while they are still in the kidneys (as opposed to passing in the urinary tract) is like 5%'. Well, I can't say that my pain is caused by my stones, BUT I am still having kidney pain. Who knows--it could be purely coincidental that we did find stones, the biggest one in my right kidney (where I have had this pain for 2 yrs), and that I was hydronephrotic on my right side during pregnancy. But the fact is, I am having unbearable bouts of kidney pain, mixed with nausea and cramping. Well, this doctor still considers a 'musculo-skeletal' problem more-likely. Yeah, like I have a pulled muscle. The first doctor prescribed an antibiotic because he thought I had a urinary tract infection---which I have no symptoms of. I am taking it anyway.

He is going to do X-rays on friday to see the stones more clearly and possibly use the shockwave treatment to break them up now so I won't have to deal with them when I am pregnant next. He is also doing a 24 hr urine collection to see what is causing the stones to collect. I am expecting a strict life-time diet to come of this, which is fine. I just want the culprit for my current pain to be found.

2 nights ago I woke up with the pain so bad, it felt like my kidney was having a contraction. I went to the ER but after 2 hours a doctor hadn't seen me and my pain had subsided. It was 4 am. I went home since it was futile to lay there waiting when John was home with the 2 babies who woke up when I left at 1:30am and my mom drove me. Since then the pain has been dull and constant, in between a few bouts of bad nauseating pain. I am aching on my right side just below my ribcage.

I just was able to view my urine culture results on this awesome "my chart" website connected to my doctor and some odd results (that I still haven't talked to the doctor about) and there were a couple flags:
URINE OCCULT BLOOD- moderate (normal is negative)
URINE PROTEIN SCREEN- 30 mg/dl (normal is zero)
And this is the information I found about those results:
"Normally there is no protein detectable on a urinalysis strip. Protein can indicate kidney damage, blood in the urine, or an infection. A more extensive microalbumin test should be performed to detect early damage to kidneys due to diseases like diabetes. Occult blood simply means 'hidden' blood- not visible but still present. Normally there is no blood in the urine, which can indicate an infection, kidney stones, trauma, or bleeding from the bladder or kidney tumor."

The pain is now on both sides. I was prescribed some pain killers (6 of them...because they are narcotics), but I don't want to waste them for fear that I may start actually passing a stone at any moment. It is terrible to be in fear of that impending pain, which I can't even fathom. I can't imagine a worse pain than what I endured with Lucas.

It frustrates me that this doctor can still tell me it is probably a muscle pain. I need this to be taken care of before John goes back out to sea next week; there is no way I can take care of L + O in that kind of pain.


The happy news is that John has been perfect. I haven't had to even ask. John is such a good man lately. He has been home taking care of not only both babies, but me. And in such good spirits about it. He has been hugging me and telling me how happy he is with our family and how lucky he is. I don't know where this came from, but it came at just the right time. He doesn't even get his daily 2 hr nap everyday, and still takes the initiative to feed, change, bathe and play with both babies. Last night we stayed up a little late(even though he had to get up and go to work at 5am) and he made be pancakes because it was the only thing that sounded good to me (i've been nauseated but I have to eat when I take the antibiotics 2x a day). Thank you John for being the man I need. I love you.

2 comments:

Iris said...

Man, this is frustrating to just read. I can't imagine what you must be feeling like.

Glad John is being so helpful.

And by the way, those pancakes look SO GOOD! How did he make them so thick and fluffy??! LOL

Prolifegirly said...

thanks for your sympathy. I just hope the doctor acknowledges that it is my kidney so we can move forward and treat it.

Yes John is a big help now! And he always makes great pancakes with that griddle his parents gave us. It gets to the perfect temperature and he flips em just at the right time :) BUT he does use Lucas' fatty milk because he says it makes them fluffier lol. I only had 1 1/2 though--they are filling!