I tell you, I should've gone to school to be a doctor.
I mean, it does interest me to research health conditions, but it's also frustrating when you know something is wrong with you (example: enduring 3 yrs and 2 pregnancies with a 7mm kidney stone doctors wouldn't believe I had) or your kid, and doctors assume you are overbearing and exaggerating. Thankfully, we found a pediatrician that considers holistic/integrative health as well as traditional.
I was right about Olivia's skin condition being Vitiligo. By and large, the information on vitiligo states that there is no known cause, no underlying reason, and that the damage is only psychological. Since I have been learning about food sensitivities, and have suspected a gluten allergy or celiacs, I was able to delve deeper and found recent corresponding studies having to do with autoimmune genetics and skin conditions. I know if I had a regular pediatrician (i.e. one that requires full vaccinations, which we do not do), they would have parroted that vitiligo has no underlying cause. Since we have a good doctor, she decided to run some tests on Olivia's blood and urine to check for antibodies for allergens and deficiencies.
Olivia's full lab review appt isn't til next month, which is why I knew it was a big deal when they called to go over some of the flagged results today.
She has a severe allergy to wheat, and gluten, and then just for fun, grapefruit lol. I suspected the gluten allergy just judging from her stomach issues. But what I didn't know was that with celiacs, the intestine villi become damaged, and then they are unable to absorb the vitamins and nutrients in all your food. Which means, the symptoms/effects can be exhibited through any number of illness regarding your skin, bones, stomach, joints, and organs.
Unless you are close to someone with a gluten allergy or intolerance (which is less severe), then you don't realize how pervasive wheat flour and gluten are in everything we eat. You think they are eating a fairly balanced meal with waffles or wheat toast in the morning, with a healthy cereal that doesn't have dyes or lots of sugar, with a taco or quesadilla with flour tortillas, pita bread or crackers, or even breaded chicken or pasta.....pasta...is Olivia's staple food. Spaghetti and macaroni. Even soy sauce and dressings have gluten. Even beer (because of the barley or rye). Thankfully Olivia is like me and doesn't like the taste of beer :P All things wheat or with flour (excluding rice flour and corn). So then all the 'whole grains' labeled health foods become the devil, and you spend all your time and energy reading labels...first we cut out dyes and most preservatives, then artificial sugars and hormone-filled dairy/eggs. We also try to find lower sodium everything. Then we buy organic. Then we buy probiotics. And now we have to cut out something that we had with every meal for most of our lives.
I realize that it is becoming more common and hopefully that will drive prices down and increase our options, but spending $5 for a tiny loaf of 2"x 2" gluten free rubbery bread for our sandwiches, ain't gonna suffice. I love deli meats and we get the stuff without nitrates...but what can we eat it on!? I will be researching and talking to other moms with gluten-free kids, but this won't just be a change for Olivia.
Dr. Bain says with our history of autoimmune and allergies, we should all be gluten free anyway---plus with Frankie's eczema (which he still battles esp with dry weather coming) he is most likely allergic to some of the new foods he is trying. He had an appt today for his 1 yr checkup. We drew blood to check for his food allergies since he is getting new eczema patches on his hands. Feeding him won't be so bad because he is eating most things and liking them--not picky yet. I found some gluten free chicken nuggets to replace the spinach/turkey ravioli he liked. I bought some freeze dried fruit and veggies to replace the 'puffs' and cereals he likes. We bought rice crackers (which really only taste good with cheese! Gouda preferrably).
Lucas will be tested next.
SO, it feels somewhat good to know my suspicions were right and that we can help all our kids be healthy now so they can grow strong and not have lifelong allergies or sicknesses. BUT it's overwhelming to change so much for all of us, when many of the things we were eating were by most accounts, healthy, but we are allergic to. I was giving Frankie almond milk for the 2 bottles he still has a day, but I think he's allergic. Almond milk has more calcium and vit D than cow's milk, plus protein, but it had a lot of sugar and not enough fat for Frankie. Until we know he is not also intolerant of dairy, the dr says to find foods to give him the calcium, vitamin D and protein that the milk would be. So he likes turkey, chicken, beef, rice, avocado, edamame, and all fruit. I will be getting him a nondairy probiotic supplement, and boosting his immune system with vitamin D drops (with omega), thieves oil, and briar rose.
As far as my testing, the gastro doc said I have elevated C-reactive proteins, and high sedamentation rate, both of which mean lots of inflammation that can be many things (gluten intolerance, crohns, ulcerative colitis, cancer, autoimmune diseases like lupus etc)---the only way to be sure what is wrong is to do an endoscopy (camera down my throat to my intestine) which they won't do until after I've delivered. That may be happening in February if I am still feeling sick.
I also had my 34 week appt today and baby is measuring at 38 weeks...which is what I feel like. His head is down so I feel and see his feet in my ribs and kicking my herniated belly button 24/7. I have no abdominal strength to get out of bed normally anymore...I sorta roll off, or John helps :) The doctor wants to induce 12/20, since the baby is large, and it's right around Xmas. We'll see if he stays in there that long--he's running out of room, and seems to be expressing that a lot!
I made John try the barilla gluten-free pasta tonight and he said it wasn't too bad, but of course it was covered in his dennison's chili! The kid's ate it too, with some gluten-free corn bread Susan made. We will be learning all we can in the coming weeks and hopefully Eustace will start out much healthier than all of us!
I will do my best and keep motivated with the thought of how many problems the kids might face as adults if they continued to consume wheat. I love bran...bran flakes and bran muffins...
but I'm grateful to know now, and to have confidence in their doctor taking interest and not poo-pooing my concerns.